ChrisK Posted December 7, 2016 Author Report Share Posted December 7, 2016 22 minutes ago, KnarlyCarl said: Been on the edge of my seat reading up since the last time I visited here, that's incredible, and yes, the costs never seem proportionate!!! I didn't have the doozy you are going through with my son, but it caused a blood clot and expensive stay in the hospital for my wife from her pregnancy 3 days in ICU, then a regular bed for a couple more days, close to $90,000... these are the times you realize how grateful to have good insurance! So you weren't able to get this sweat test, but were still able to get him moved closer to you guys? Yeah bro, he didn't provide enough sweat because he's so small. But, our nurse is confident he cannot develop CF based on his latest blood work. From what I understand is he will carry the gene presumably like me and not develop the illness Tomorrow I think we gat to talk with the geneticist! Then off to a level 2 NICU two towns from our new home and God willing a perfect Christmas with our son! 3 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 7, 2016 Author Report Share Posted December 7, 2016 26 minutes ago, KnarlyCarl said: Been on the edge of my seat reading up since the last time I visited here, that's incredible, and yes, the costs never seem proportionate!!! I didn't have the doozy you are going through with my son, but it caused a blood clot and expensive stay in the hospital for my wife from her pregnancy 3 days in ICU, then a regular bed for a couple more days, close to $90,000... these are the times you realize how grateful to have good insurance! So you weren't able to get this sweat test, but were still able to get him moved closer to you guys? Here he is right now at 1040 on my arm fast asleep! 5 Quote Link to comment Share on other sites More sharing options...
KnarlyCarl Posted December 7, 2016 Report Share Posted December 7, 2016 My boy (3.5yrs) was just in my arms, screaming his head off because he didn't want to go to sleep... LOL fun times man, enjoy every second you can 2 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 7, 2016 Author Report Share Posted December 7, 2016 Roger that bro. My Dad told me...."wait till he's 16..." I said he can do anything he wants. He's earned it Yeah, that MIGHT change 4 Quote Link to comment Share on other sites More sharing options...
BMack37 Posted December 7, 2016 Report Share Posted December 7, 2016 1 hour ago, KnarlyCarl said: My boy (3.5yrs) was just in my arms, screaming his head off because he didn't want to go to sleep... LOL fun times man, enjoy every second you can I don't have kids but I have a Nephew and damned if it doesn't fly. His first couple of years went slow but I swear he went from 3 to 7 overnight. I'll tell you, no matter how bad your day is or how depressed you might be; when you see him with a huge smile after not seeing you all day, running up and jumping in your arms, you will feel like Superman. 4 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 8, 2016 Author Report Share Posted December 8, 2016 We got transported down to a Level 2 NICU yesterday and the transport went great even in the snow. My son got his food tube removed this morning! Sent from my iPhone using Tapatalk 10 Quote Link to comment Share on other sites More sharing options...
khariV Posted December 8, 2016 Report Share Posted December 8, 2016 That's awesome news. Here's hoping that the little bugger can be home for Christmas! 2 Quote Link to comment Share on other sites More sharing options...
Bigmikez Posted December 8, 2016 Report Share Posted December 8, 2016 Man look at that BIg BOY!! He looks great!!!??? glad the transport went good! 3 Quote Link to comment Share on other sites More sharing options...
Eric - TIA Posted December 8, 2016 Report Share Posted December 8, 2016 Awesome. Before you know it he will be sneaking out at night to hang out with his friends while your passed out in the reclinerSent from my iPhone using Tapatalk 6 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 9, 2016 Author Report Share Posted December 9, 2016 6 hours ago, Bigmikez said: Man look at that BIg BOY!! He looks great!!!??? glad the transport went good! Thanks a lot Mike! Very stressful day but since he got here they are saying we might take our son home this weekend!!!!!! 5 Quote Link to comment Share on other sites More sharing options...
MikeyB Posted December 9, 2016 Report Share Posted December 9, 2016 Glad he's doing better Chris, our thoughts and prayers are with you brother 3 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 9, 2016 Author Report Share Posted December 9, 2016 3 minutes ago, MikeyB said: Glad he's doing better Chris, our thoughts and prayers are with you brother Thanks Mikey, I appreciate that much sir! 1 Quote Link to comment Share on other sites More sharing options...
Bigmikez Posted December 9, 2016 Report Share Posted December 9, 2016 30 minutes ago, ChrisK said: Thanks a lot Mike! Very stressful day but since he got here they are saying we might take our son home this weekend!!!!!! ???? awesome news! 3 Quote Link to comment Share on other sites More sharing options...
wildroamer Posted December 9, 2016 Report Share Posted December 9, 2016 Glad to hear the good news pal! He seems to be looking for his impact driver maybe, lol! 3 Quote Link to comment Share on other sites More sharing options...
khariV Posted December 9, 2016 Report Share Posted December 9, 2016 14 hours ago, wildroamer said: Glad to hear the good news pal! He seems to be looking for his impact driver maybe, lol! Newborns look for one and one thing only. Actually, come to think of it, that probably won't change as he gets older, though for different reasons... 5 Quote Link to comment Share on other sites More sharing options...
KnarlyCarl Posted December 9, 2016 Report Share Posted December 9, 2016 11 minutes ago, khariV said: Newborns look for one and one thing only. Actually, come to think of it, that probably won't change as he gets older, though for different reasons... Took me a minute..... Lol!!! 2 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 11, 2016 Author Report Share Posted December 11, 2016 Well boys. My son, William came home today. Thank you for your prayers. Thank God. 7 Quote Link to comment Share on other sites More sharing options...
Foneguy Posted December 11, 2016 Report Share Posted December 11, 2016 On 12/8/2016 at 0:59 PM, ChrisK said: We got transported down to a Level 2 NICU yesterday and the transport went great even in the snow. My son got his food tube removed this morning! Sent from my iPhone using Tapatalk Great news, great progress...... i have been away for a week, and just catching up. continuing the prayers.....prepare for a blessed and Merry Christmas.... you deserve it !!!! (handsome young man right there !!!!) 2 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 11, 2016 Author Report Share Posted December 11, 2016 1 hour ago, Foneguy said: Great news, great progress...... i have been away for a week, and just catching up. continuing the prayers.....prepare for a blessed and Merry Christmas.... you deserve it !!!! (handsome young man right there !!!!) Thanks Buddy! 1 Quote Link to comment Share on other sites More sharing options...
ChrisK Posted December 11, 2016 Author Report Share Posted December 11, 2016 Here he's is packed up and ready to rock and roll!Sent from my iPhone using Tapatalk 7 Quote Link to comment Share on other sites More sharing options...
NicolasRamos Posted December 11, 2016 Report Share Posted December 11, 2016 Here he's is packed up and ready to rock and roll!Sent from my iPhone using TapatalkGood lookin cowboy! Sent from my iPhone using Tapatalk Pro 2 Quote Link to comment Share on other sites More sharing options...
khariV Posted December 11, 2016 Report Share Posted December 11, 2016 Police escort home! Awesome news. 3 Quote Link to comment Share on other sites More sharing options...
JimboS1ice Posted December 11, 2016 Report Share Posted December 11, 2016 Very good Chris! Glad to hear all is well, ow here is the true parenting test lolSent from my iPad using Tapatalk 3 Quote Link to comment Share on other sites More sharing options...
BMack37 Posted December 11, 2016 Report Share Posted December 11, 2016 Great news!!! 2 Quote Link to comment Share on other sites More sharing options...
comp56 Posted December 11, 2016 Report Share Posted December 11, 2016 Super news Pops!.... 2 Quote Link to comment Share on other sites More sharing options...
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